"I’m a single parent, my job is 24/7 there is no time off, no holidays, no time to be sick. My son Jack has a rare condition called OberKlind Danks Syndrome, there are about 50 cases in the world. Finding out your child has a condition that is lifelong and in cases life limiting, isn’t easy. I was told he may never walk, talk or eat and I would be doing the job of 10 Mothers. Through the extreme highs & the extreme lows Jack and Jill have been the constant thread in my life since the very beginning."